AF Association is a UK registered charity which focuses on raising awareness of atrial fibrillation (AF) by providing information and support for patients and medical professionals involved in detecting, diagnosing and managing AF. AF is the most common arrhythmia (heart rhythm disorder), occurring when abnormal electrical impulses take place in the upper chambers of the heart resulting in an irregular pulse rhythm. It is estimated that 1.4 million people in the UK are affected by AF, with 500,000 more currently undiagnosed. People with AF are five times more likely to suffer an AF-related stroke which is more devastating, debilitating and disabling than any other type of stroke and are all too often fatal.
AF Association works closely with medical professionals, Department of Health, Government, NHS Trusts, strategic health authorities, patients, carers, patient support group members and allied groups.
Arrhythmia Alliance (A-A) is a coalition of charities, patient groups, patients, carers, medical groups and allied professionals who work together under the A-A umbrella to promote timely and effective diagnosis and treatment of arrhythmias.
We provide information and support to arrhythmia patients through our website, helpline, resources and events including Patients Day.
Arrhythmia Alliance organises Heart Rhythm Congress (HRC), the UK’s largest annual arrhythmia specialist event, offering an unrivalled opportunity for healthcare professionals interested in the management of arrhythmias to share effective practice, showcase innovation and network with UK and international delegates.
Arrhythmia Alliance World Heart Rhythm Week held annually raises awareness of arrhythmias by holding activities around the world. Our Know Your Pulse events are the first step for many in gaining a diagnosis of a potentially life-threatening condition.
Blood Pressure UK is the only charity solely dedicated to lowering the nation's blood pressure to prevent disability and death from stroke and heart disease.
Our vision is that everyone will know their blood pressure numbers, in the same way that they know their height or weight, and take steps to keep them healthy both now and in the future.
The British and Irish Hypertension Society is the forum for professionals working in the field of hypertension and cardiovascular disease in the UK and Ireland. The Society membership comprises doctors, nurses and other healthcare workers specialising in the delivery of care in hypertension and allied fields, together with clinicians and scientists in the forefront of cardiovascular research. Our mission is to reduce the burden and consequences of hypertension and cardiovascular disease in the UK, Ireland and beyond.
The British Heart Foundation is the nation's heart charity and the largest independent funder of cardiovascular research.
Coronary heart disease is the UK's single biggest killer but we are leading the fight against it. Their pioneering research has helped to transform the lives of people living with heart and circulatory conditions.
Their work has been central to the discoveries of vital treatments that are helping to change the face of the UK's fight against heart disease.
Cascade testing for hypertrophic cardiomyopathy
The British Heart Foundation has launched the Miles Frost Fund to establish a UK-wide cascade testing service for families at risk of hypertrophic cardiomyopathy (HCM).
The fund has been established in memory of Sir David Frost’s son Miles who died suddenly from an undiagnosed heart condition in 2015. Read more...
Diabetes UK is leading the fight against the most devastating and fastest growing health crisis of our time, to create a world where diabetes can do no harm.
We provide information, guidance and peer support, to help people with diabetes manage their condition. We are also one of the largest funders of diabetes research in the UK.
Working closely with healthcare professionals is central to making sure that everyone with diabetes gets the care they deserve, whether that be through prompt diagnosis, clinical care or support
We want to help people with diabetes live a full and healthy life. This means giving them the right knowledge at the right time, to help prevent or delay complications.
HEART UK – The cholesterol charity - Providing support, guidance and education services to healthcare professionals and people and families with concerns about cholesterol.
One in 250 people may have a high cholesterol condition called Familial Hypercholesterolaemia (FH), which means they are at high risk of a heart attack, stroke or sudden death in their 20s, 30s and 40s. HEART UK is for anyone affected by raised cholesterol or other blood fats, including triglycerides.
Heart Valve Voice is the UK’s dedicated heart valve disease charity. We work with patients and clinicians to help increase the awareness of heart valve disease in the UK and improve diagnosis and treatment. While there have been many advancements in the treatment of this disease the unfortunate fact is that far too many people are not being diagnosed and treated early enough. Our aim is to ensure that more of the population is aware of the importance of having your heart checked for heart valve disease, which can often be detected through a simple stethoscope check. With increased awareness we hope to see many more heart valve disease patients get the treatment they need to go on to live full and happy lives.
The objectives of PCCS:
To represent primary care cardiovascular health needs at policy level.
To promote best practice in primary care cardiovascular health through education, training and service development.
To support the development of primary care health care professionals in cardiovascular medicine.
To facilitate and lead primary care cardiovascular research.
To influence commissioners for the next decade (or longer).
Fainting or syncope can affect people of all ages and 1 in 2 people will faint at some point in their life. Syncope is a temporary loss of consciousness that occurs when there is a sudden lack of blood supply to the brain but in many cases fainting is the only sign of an abnormal heart rhythm which is the leading cause of sudden cardiac arrest – a devastating condition that kills more than 100,000 people every year in the UK yet goes undiagnosed.
STARS (Syncope Trust And Reflex anoxic Seizures) is a UK charity providing personalised support and advice on these life-changing and sometimes debilitating conditions. We provide support to patients, care-givers and medical professionals via our dedicated helpline and information resources, approved by top medical experts offering detailed information on all aspects of living with a syncopal condition. STARS is the only charity in the UK, providing personalised help and advice with over 25 years’ experience in these conditions, backed by leading experts in the field.
The UK Stroke Forum is a coalition of over 30 organisations all committed to improving stroke care in the UK.
They organise two annual multidisciplinary conferences for healthcare professionals – a three day event in December (Telford) and a one day event in June (Belfast).
The aim of the UK Stroke Forum is to provide opportunities for all stroke professionals and researchers to come together so they can learn from each other, share ideas and ultimately improve standards of care for stroke survivors.